The Dystonia Photography Project

The Photography Project is a series of portraits about people living with Dystonia, a neurological movement disorder. I visited 16 people, with different forms of dystonia, from around Ireland to make a portrait of them. During the visit an ‘alternative’ portrait was also made, creating images that described their interests, day-to-day activities and hobbies in collaboration with the participants.

I was very moved by the stories of all the participants in the project. Their resilience and strength while coping with dystonia on a day to day basis has stayed with me. I would like to thank all the participants for taking part in the project and welcoming me into their homes.
The aim of the project was to raise awareness of dystonia and to show an insight into the lives of people living with dystonia. The project was co-ordinated with the assistance of Dystonia Ireland, a voluntary organisation that raises the level of awareness of Dystonia and offers support and information to all people with dystonia and their families nationwide.

The Dystonia Photography Project was exhibited at Dystonia Ireland Conference June 2012 in The Mansion House, Dublin and was supported by an educational grant from Medtronic Limited.

For more information about Dystonia visit